News and events News Rare disease creates bond between Israeli and Palestinian patients They met in the Pediatrics Department at Hadassah Mount Scopus, two couples whose children suffer from a rare disease and require special and expensive food-medication. One couple from an ultra-Orthodox neighborhood in Jerusalem, and one couple from Gaza, both share the same concern for their tiny loved ones who are hospitalized for treatment and follow-up at a pediatric gastroenterology clinic at Hadassah Mount Scopus. "We are treated by Prof. Michael Wilshansky, the department's director, and Dr. Perry Milman, an expert in pediatric gastroenterology. We are in the best of hands,” says D, the mother who speaks Hebrew. "Prof. Wilshansky diagnosed the rare disease my daughter suffers from by her symptoms, even before the test results arrived. His knowledge and understanding are astonishing, as is compassion and his ability to accompany families in the long process. "This medicine is saving the lives of our babies" He has been there for us for many months day and night, and even when he traveled abroad, he asked us to be in touch by phone for every need, caring for our daughter 24 hours a day. He works with Dr. Milman. She is so cordial and has a heart of gold. Unassumingly she performs the most complex tests with such professionalism and gentleness. There is no doubt that we owe this team so much”. Prof. Michael Wilshansky, Director of the Pediatric Gastroenterology Unit at Hadassah, explains that the syndrome the two babies suffer from is most rare: there are only 30 children worldwide who suffer from it. Prof. Michael Wilshansky with the babies "The two babies we have at the clinic on Mount Scopus depend on this medicine to live. The syndrome they suffer from does not allow the intestine to function properly in digesting any other type of food. This is the only food that exists for them. It is very expensive, and very complicated to purchase for those who do not have medical insurance. " During the hospitalization, D. and her husband met the parents of the baby from Gaza, who suffers from the same rare disease, and is also fed by the unique and expensive medicine. “When we heard that the parents from Gaza had trouble getting and paying for it, we decided to do an act of benevolence and help them get it. We enrolled everyone we know for this effort, friends and acquaintance. Soon the drug arrived and they were very excited and happy. It's the only thing their daughter can eat. " The parents from Gaza do not conceal their excitement. "Thanks to these generous people, our daughter was given life-saving medication. She is now improving and eating these food capsules. We do not take it for granted. We thank them every day and every minute. It is an act of kindness that we will never forget. " D. says: "As far as we're concerned, a sick baby is like any other baby, no matter where it comes from and what its nationality is. We helped with all our heart. When we needed this special remedy, there were those who got it for us and now we have passed the mitzvah on. "